Informing research participants and consent to participate
Informed consent to participate in research is a central ethical principle in research with human participants. People participating in research have the right to participate voluntarily but also to refuse to participate without fear of negative consequences.
The research participant must be aware that they are participating in research, especially in situations where the researcher also has another role in relation to the participant, for example the participant’s superior or teacher.
The starting point of consent is that the person giving their consent knows and understands what they are consenting to. The research participant must be informed in a clear and understandable way of the purpose of research, its authors, possible risks or harms to research participants, voluntary participation and provision of data, data processing, confidentiality, duration of storage, disclosures and possible archiving and opening of research data.
Based on being informed, the research participant can give their consent to:
- participating in the research
- the processing of their personal data as a part of implementing the research
- he reuse and archiving of research data concerning them